HD Focus

Two separate research groups recently published work on the blood-brain barrier (BBB). You can think of the BBB like a bouncer that keeps the riffraff out of the VIP section that is your brain. One group advanced how the brain’s barrier is modeled in the lab using stem cells. Another group developed a harmless virus that can be delivered intravenously (by IV) and get past the brain’s barrier to deliver drugs. While Huntington’s disease (HD) wasn’t specifically studied in either publication, both can advance how we study HD in the lab and eventually treat the disease.

Your brain is a VIP

Your brain is like a VIP section – not everything floating around in your blood and body is allowed there. Bacteria and viruses that may make your stomach or lungs sick are kept out of the brain. Even certain medicines are excluded, like antibiotics.

The brain’s bouncer is called the blood-brain barrier, or BBB for short. The BBB is incredibly selective about what is allowed into our brains. It’s established very early during development, before we’re ever born. Because the brain is so delicate, the BBB ensures that only privileged molecules and substances can get in.

[vc_row][vc_column][vc_column_text] A ABH e as famílias de Huntington foram convidadas para participar do XV Fórum Nacional de Políticas de Saúde no Brasil – Doenças Raras do Instituto Brasileiro de Ação Responsável que acontecerá no dia 13/junho, no Interlegis em Brasília/DF. O evento reunirá representantes de instituições do governo, da comunidade acadêmica, do setor produtivo e […]

O post Participe do XV Fórum Nacional de Políticas de Saúde no Brasil – Doenças Raras apareceu primeiro em ABH - Associação Brasil Huntington.

L’esperienza della convivenza con la malattia testimonia ed evidenza come l’ipotesi, l’attesa e la comparsa dell’Huntington siano dimensioni esistenziali, capaci di scandire e scardinare tanto la storia del malato quanto quella della famiglia nel suo complesso, nella quale sovente convivono più malati contemporaneamente. A cambiare forma sono i pensieri, i desideri, i progetti, i sogni, […]

L'articolo Fisioterapia, logopedia e stimolazione cognitiva proviene da huntington-onlus.

Missa inte den 2:a upplagan av webbinariet ”Forskningsuppdateringar för de nordiska länderna” Den europeiska Huntingtonföreningen/Moving Forward Teamet anordnar en andra upplaga av webbinariet ”Forskningsuppdateringar för de nordiska länderna” tillsammans med med RHS och den norska patientföreningen. Webbinariet kommer att hållas den 11 juni kl. 18:00 CET och det kommer att hållas på norska, svenska och…

Inlägget Missa inte andra upplagan av Nordiskt forskningswebbinar 11 juni kl 18.00 publicerades först på RHS Riksförbundet Huntingtons Sjukdom.

Vi har fått avbokningar till årets familjeläger i Hjo den 24-27 juni. Det finns alltså platser kvar och vi hoppas att just du och din familj vill komma! Lägret är nu öppet för alla att anmäla sig till. Det enda krav vi har är att alla är självgående och inte kräver extra omsorg eller medicinsk…

Inlägget Det finns platser kvar på årets familjeläger 24-27 juni i Hjo publicerades först på RHS Riksförbundet Huntingtons Sjukdom.

Today we are very happy in the Huntington community.  The announcement from Uniqure that the company has received the Regenerative Medicine Advanced Therapy (RMAT) “Designation for Investigational Gene Therapy AMT-130 […]

La Importancia de las elecciones europeas para los afectados del Huntington Las elecciones europeas son una Gran Oportunidad para darle voz a todas las familias y afectados de la enfermedad […]

La entrada Las elecciones europeas están a la vuelta de la esquina. Descubre por qué las familias afectadas por la EH deberíamos ir a votar se publicó primero en .

 9 июня в 12.00 часов состоится Информационный (поликлинический) день для семей с болезнью Гентингтона .На инфо дне вы получите бесплатные консультации у лучших специалистов в области изучения и лечения болезни… More »

The post Информационный (поликлинический) день 9 июня 2024 г. appeared first on Центр помощи пациентам с орфанными заболеваниями.

The Postcards are a series of short videos aimed at non-scientists that convey the major themes, scientific breakthroughs, and clinical trial updates from each year’s Huntington’s Disease Therapeutics Conference held (most usually) in Palm Springs, California. Beginning in 2006, this series of conferences is a unique forum where researchers from academia meet with pharmaceutical and […]

Hamburg, Germany, 28 May 2024: Evotec SE (Frankfurt Stock Exchange: EVT, MDAX/TecDAX, ISIN: DE0005664809; NASDAQ: EVO) has announced the extension of its 20-year collaboration with CHDI Foundation, Inc. (“CHDI”). CHDI is a privately funded nonprofit biomedical research organization exclusively dedicated to collaboratively developing therapeutics that will substantially improve the lives of those affected by Huntington’s […]