HD Focus

ATTENZIONE POSSIBILITA’ DI ERRORI Per garantire una diffusione rapida e capillare delle notizie relative alla ricerca sull’HD e agli aggiornamenti sulle sperimentazioni in corso, questo articolo è stato sintetizzato tramite Intelligenza Artificiale dal sito HDBUZZ.NET e non è stato  revisionato da un redattore umano. Per una consultazione più affidabile, si consiglia di fare riferimento alla […]

L'articolo Huntington, svolta per la terapia genica AMT-130: il Regno Unito valuta l’approvazione mentre la FDA resta prudente sembra essere il primo su corea di huntington -AICH ROMA ONLUS -.

To find out more, please contact your HD Specialist or email sha-admin@hdscotland.org Tuesday 12 May – Lanarkshire Support Group, Coatbridge […]

When speaking to Grace (17), it doesn’t take long to realise how much growing up she has had to do […]

⏱️8 min read | What does “good care” look like in Huntington’s Disease? A new Dutch study asked familial and professional caregivers, and uncovered how differently it’s experienced in practice.

When a blind person uses a cane, something strange happens in their brain. The neural map of their body (the internal model that tracks where they end and the world […]

Naša spoločnosť sa chce pripojiť ku kampani týkajúcej sa povedomia o Huntingtonovej chorobe ktorú zastrešuje Kanadská asociácia.  Toľko rokov bola Huntingtonova choroba (HCH), udržiavaná v tajnosti, kvôli stigme a diskriminácii. Kampaň #LightItUp4HD je skvelou príležitosťou pre ľudí s HCH zvýšiť povedomie o HCH a nadviazať kontakty, získať podporu od svojich komunít a napredovať s hrdosťou …

Rozsvietiť svetlá pre HCH Čítajte viac »

 “Je levert steeds een stukje in… maar je moet door.” Leven met Huntington is een voortdurend rouwproces, en tegelijk een verhaal van veerkracht.

Bekijk de volledige video van Lilian hier

 

ASSEMBLEIA GERAL ORDINÁRIA – Acesse o edital. A ABH – Associação Brasil Huntington, em cumprimento aos seus Estatutos, convoca seus associados e convida familiares, amigos, parceiros, colaboradores e a população em geral para participar da Assembleia Geral Ordinária a ser realizada: Dia: 23 de maio de 2026Horário: 14:00 h – Primeira Convocação14:30 h – Segunda […]

O post Edital de Convocação – Assembleia Geral Ordinária apareceu primeiro em ABH – Associação Brasil Huntington.

⏱️ 6 min read | While the US regulatory path for AMT-130 remains complicated, uniQure announced plans to seek approval for its HD gene therapy in the UK. Here’s what that means, and what might be to come.

What is the NAD-HD study and what does it mean for you? – Written by the Moving Forward team on 6th May 2026 On 14 April,…

⏱️10 min read | PTC Therapeutics shared 2-year data for votoplam, a daily HTT-lowering pill. Stage 2 participants showed up to 52% slowing of disease progression. Here’s what the data show, what’s still missing, and the roll out of the Phase 3 trial.

HDSA Marks 34 Years of Huntington’s Disease Awareness Month This May  Nationwide events, community storytelling, proclamations, and landmarks lighting up...

The post HDSA Marks 34 Years of Huntington’s Disease Awareness Month This May first appeared on Huntington's Disease Society of America.

<p>The post HDSA Marks 34 Years of Huntington’s Disease Awareness Month This May first appeared on Huntington's Disease Society of America.</p>

V správach počúvame o reformách invalidity, ale aká je realita nás, rodín s Huntingtonovou chorobou?​V poslednej dobe sa v médiách často rozoberá téma PN-iek a prehodnocovania invalidity.Ako sa však na tieto debaty máme pozerať my, ktorí s touto ťažkou diagnózou bojujeme v priamom prenose celé desaťročia?​Invalidný dôchodok by nemal byť len symbolickou dávkou, ale spravodlivým …

Keď nás systém nevidí Čítajte viac »

⏱️ 8 min read | April 2026 showed us a toxic HTT fragment is center stage in mouse research, CRISPR is showing promise in mouse studies, AI and wearables move closer to the clinic, and 2 studies shine a light on the weight carried by HD caregivers.

A global awareness and engagement campaign for Huntington’s Disease launches this May The European Huntington Association (EHA) and the International Huntington Association (IHA) are joining forces again, launching a joint […]

We have received an interesting update from the pharmaceutical company Novartis about the medicine they currently are testing for Huntington’s Disease.   Do you remember the study named PIVOT-HD done a […]

May is Huntington’s Disease Awareness Month – a time to increase understanding, educate, amplify voices, and bring communities together in […]