HD News

Charity partner takes fundraising a step further after Dance 100

23 June, 2023

Scottish Huntington's Association

Thank you so much to our incredible charity partner, Lanarkshire-based accountancy firm Benson Wood & Co. Since joining forces with Scottish Huntington’s Association in April, the staff have been very busy, including by stepping forward as headline sponsor for Dance 100 and coming along on the day to raise a

The post Charity partner takes fundraising a step further after Dance 100 appeared first on Scottish Huntington's Association.

Aktuelle Informationen von PTC Therapeutics und uniQure über ihre Huntingtin-Verminderungs-Studien

22 June, 2023

Schweizerische Huntington Vereinigung

Sowohl PTC Therapeutics als auch uniQure haben Neues zu Ihren laufenden Huntingtin-Senkungs-Studien veröffentlicht. Wir schauen uns die Daten und deren Bedeutung genauer an.

Updates from PTC Therapeutics and uniQure on their huntingtin-lowering trials

21 June, 2023

HDBuzz (English)

On 21st June, both PTC Therapeutics and uniQure shared data from their respective clinical trials, both testing huntingtin-lowering as an approach to treat HD, but with different types of therapies. In this article we go through the data they each presented, what it all means and the next steps the companies will be taking.

Treating HD with huntingtin-lowering

Dance 100 and our supporters go global!

19 June, 2023

Scottish Huntington's Association

This amazing shot won first prize in the Stronger Together in the HD Community competition organised jointly by International Huntington Association and European Huntington Association. The competition was open to organisations and family members across the world as part of the organisations’ shared Huntington’s Disease Awareness Month campaign

The post Dance 100 and our supporters go global! appeared first on Scottish Huntington's Association.

Meet Strictly fundraising champ Trishia!

13 June, 2023

Scottish Huntington's Association

Ballroom beginner Patrishia Adams from Easterhouse entered a prestigious dance competition – then gave herself just 10 weeks to learn all the steps and raise as much money as possible for Scottish Huntington’s Association. The 42-year-old anaesthetics nurse hadn’t danced since her ballet and tap days 30 years ago. But

The post Meet Strictly fundraising champ Trishia! appeared first on Scottish Huntington's Association.

HSG2023 - gericht op Kennisagenda HKNN

13 June, 2023

Nieuws - Vereniging van Huntington

De Huntington Stimulation Grant 2023 is open voor aanmeldingen

De Vereniging van Huntington (VvH) vindt het uiterst belangrijk dat wetenschappelijk onderzoek naar de ziekte van Huntington in Nederland wordt gedaan. Daarom stelt de VvH dit jaar een bedrag van maximaal € 50.000,- beschikbaar voor veelbelovende, kleinschalige studies met een innovatief karakter.

Die Europäische Huntington-Vereinigung Conference

10 June, 2023

Schweizerische Huntington Vereinigung

EHA freut sich, Sie einladen zu können, sich der HD-Gemeinschaft auf der bevorstehenden Konferenz in Blankenberge, Belgien, vom 19. bis 22. Oktober anzuschließen. Die Konferenz steht allen offen, die in ihrer Familie mit Huntington leben oder sich als Angehörige, Freunde, Verwandte oder Freiwillige für die Krankheit interessieren

Opgroeien in een Huntingtongezin

24 May, 2023

Nieuws - Vereniging van Huntington

Ben jij opgegroeid met een ouder met Huntington? En ben je nu tussen de 18 en 35 jaar?

Start here!

22 May, 2023

HDBuzz (English)

Welcome to HDBuzz! This special page is for people who are new to Huntington's disease, or new to the world of HD research.

Reading the articles linked here will help you pick up the basics of what Huntington's disease is, and get up to speed with some of the most promising things scientists are doing to come up with effective treatments for HD.

Huntington's disease - the bare essentials

* Our Science FAQ covers the very basics of HD and introduces some ideas about why we need research to find treatments.

About HDBuzz

* Our HDBuzz FAQ and People Page explain what HDBuzz is, and the people behind it.
* And our Funding page explains where we get our money from and how we make sure HDBuzz is neutral and reliable.

Huntington’s disease therapeutics conference 2023 - Day 3

22 May, 2023

HDBuzz (English)

Welcome to the third and final day of HD science, live from Dubrovnik, Croatia!

Our Twitter updates are compiled below. Continue to follow live updates for the final day of the conference with the hashtag #HDTC2023.
Check out our coverage of Day 1 here: https://en.hdbuzz.net/343 and day 2 here: https://en.hdbuzz.net/344.

Biomarkers

This morning’s session will focus on biomarkers, things we can measure to get a picture of a person’s health or their response to a drug. Different types of biomarker measurements might focus on predicting onset, monitoring a person’s HD, or checking drug safety. As we heard last night, NfL levels can help us get a better picture of brain health, but there are other proteins also being studied for this purpose.

HD Clarity

Huntington’s disease therapeutics conference 2023 - Day 2

4 May, 2023

HDBuzz (English)

Welcome to the second full day of HD science, live from Dubrovnik! After yesterday’s amazing basic science talks, today begins with a session focused on companies developing new experimental treatments for HD.

Our Twitter updates are compiled below. Continue to follow live updates for the rest of the conference with the hashtag #HDTC2023.

Check out our coverage of Day 1 here: https://en.hdbuzz.net/343 . We’ll post summaries in article format for each day of the conference.

HD therapeutic candidates

A unique approach to ASOs

Huntington’s disease therapeutics conference 2023 - Day 1

26 April, 2023

HDBuzz (English)

Hello from Dubrovnik, Croatia, where the 2023 CHDI Therapeutics Conference will be taking place from Monday, April 24th, through Thursday, April 27th!

This conference is a big one for HD researchers worldwide, from industry, academia, and nonprofit. Dozens of scientists will give talks on all things HD, from genetics, to therapeutics, to clinical trial news.

The HDBuzz Editorial team will be on the scene starting on the morning of Tuesday, April 24th, live-tweeting scientific talks and updates on the progress of clinical trials. Our Twitter updates are compiled below. Continue to follow live updates for the rest of the conference with the hashtag #HDTC2023.

PROOF-HD study of pridopidine ends with negative result

25 April, 2023

HDBuzz (English)

Top line results of the PROOF-HD study, run by Prilenia Therapeutics and testing pridopidine, have been announced at the American Academy of Neurology convention. Sadly the trial outcome was negative. We recap the history of pridopidine in Huntington’s disease, review the trial results, and figure out where this disappointing result leaves us.

The drug: pridopidine

Pridopidine has been under investigation as a possible treatment for Huntington’s disease since the early 2000s and has a long and colourful history. It was initially developed by the Swedish company Neurosearch who called it Huntexil.

Postcard from Dubrovnik

20 March, 2023

Schweizerische Huntington Vereinigung

Postcard from Dubrovnik Jedes Jahr treffen sich Forscher auf dem Gebiet der Huntington-Krankheit mit Pharma- und Biotechnologieunternehmen auf der CHDI Therapeutics Conference, um Informationen und Ideen auszutauschen. Die Postcards sind eine Reihe von kurzen Videos, die sich an Nicht-Wissenschaftler richten. Sie vermitteln die wichtigsten Themen, wissenschaftlichen Durchbrüche und Neuigkeiten zu […]

What is CHDI?

14 October, 2022

CHDI Foundation

Call to Action – New consortium will use artificial intelligence technology to conduct large-scale analysis of brain changes in Huntington’s disease

21 September, 2022

CHDI Foundation

New York, NY / London, UK, September 21 2022; IXICO, uniQure, PTC Therapeutics, Inc, and CHDI Foundation have formed the Huntington’s Disease Imaging Harmonization Consortium (HD-IH) to better understand the structural brain changes that occur over the course of HD. Accurate segmentation of magnetic resonance images (MRIs) is essential to measuring the brain’s anatomical structures, […]

European Medicines Agency issues qualification opinion that Enroll-HD can provide data and infrastructure support for post-authorization monitoring of medical products for Huntington’s disease

21 September, 2022

CHDI Foundation

New York, NY, September 21, 2022; The European Medicines Agency (EMA) has issued a qualification opinion that details facets of the Enroll-HD registry, core observational study, and clinical research platform that are especially suited to post-authorization regulatory approval. Scientific advice on Enroll-HD was sought in March 2021 under a recently launched EMA initiative to facilitate […]

Scientific Presentations from 2023 HDTC

4 August, 2022

CHDI Foundation

Postcard from Palm Springs 2022

7 July, 2022

CHDI Foundation

The Postcards are a series of short videos aimed at non-scientists that convey the major themes, scientific breakthroughs, and clinical trial updates from each year’s Huntington’s Disease Therapeutics Conference held (most usually) in Palm Springs, California. Beginning in 2006, this series of conferences is a unique forum where researchers from academia meet with pharmaceutical and […]

Postcard from Palm Springs 2022

6 July, 2022

Schweizerische Huntington Vereinigung

Jedes Jahr wird auf der CHDI Therapeutics Conference ein Video produziert, das einen Überblick über die neuesten Forschungsergebnisse zur Behandlung der Huntington-Krankheit gibt. CHDI steht für Cure Huntington’s Disease Initiative. Die Videos sind auf Englisch.