HD Focus

What an amazing time was had at the 2023 Summer Camp! This year we were joined at Lagganlia Outdoor Centre near Aviemore by 45 young people from across Scotland, our Patron Sarah Winckless, Chair of Trustees Cat Martin and Chief Executive Alistair Haw. And our Youth Service team made sure

Read More

The post Patron welcomes impact of summer camp: “We’re now seeing young people who can talk about Huntington’s disease” appeared first on Scottish Huntington's Association.

Good luck to full-time carer Taylor Graham who is returning to the Edinburgh Fringe with his new charity stand-up show in support of people with Huntington’s disease and their loved ones. This year the 25-year-old from Edinburgh will be at the Counting House (Fringe venue 170) where he will joined

Read More

The post Taylor returns to Fringe with stand-up show in support of Scottish Huntington’s Association appeared first on Scottish Huntington's Association.

The groundbreaking course ‘Huntington’s disease: an enabling approach to supporting families’ is open for applications from practitioners involved in the care and support of people and families impacted by Huntington’s disease. The short course aims to develop greater understanding of Huntington’s disease and its impact on the people and families

Read More

The post Huntington’s disease university module opens for applications from practitioners appeared first on Scottish Huntington's Association.

L’Assemblea di Huntington Onlus è programmata per sabato 23 settembre c.a. alle ore 10.00, in modalità mista, così da facilitare la partecipazione di tutti gli … Scopri di più

L'articolo Assemblea dei Soci: sabato 23 settembre sembra essere il primo su Huntington Onlus.

Il IV° Ciclo MINDFULNESS-BASED promosso dalla nostra Associazione per le persone coinvolte dalla malattia di Huntington, inizia mercoledì 4 ottobre alle ore 18. « Se … Scopri di più

L'articolo Percorso MINDFULNESS-BASED per le famiglie Huntington sembra essere il primo su Huntington Onlus.

ZIN IN EEN AUTORALLY AVONTUUR? STEUN HET GOEDE DOEL HUNTINGTON!

DOE MEE, LAAT JOUW MOTOR BRULLEN VOOR HUNTINGTON!

Stap in, geef gas en maak je klaar voor een avontuur op wielen!

Grijp deze kans om misschien wel voor het eerst in je leven mee te doen aan een autorallly.

Deze rally gaat verder dan alleen maar plezier maken.

Samen zetten we ons in voor het creëren van bewustwording en het inzamelen van geld voor de Vereniging & het Campagneteam van Huntington.

Combineer jouw passie voor autorijden en steun ons landelijke goede doel. Het wordt een dag om nooit te vergeten, vol lol, spanning en voldoening.

Update PTC Therapeutics over hun huntingtine-verlagende PIVOT-HD studie

Op 21 juni 2023 bracht PTC Therapeutics gegevens naar buiten over hun PIVOT-HD studie; PTC testte huntingtine-verlaging als een benadering om de ziekte van Huntington te behandelen. Welke gegevens presenteerde PTC, wat betekent dit en wat zijn hun volgende stappen?

Een samenvatting

Thank you so much to our incredible charity partner, Lanarkshire-based accountancy firm Benson Wood & Co. Since joining forces with Scottish Huntington’s Association in April, the staff have been very busy, including by stepping forward as headline sponsor for Dance 100 and coming along on the day to raise a

Read More

The post Charity partner takes fundraising a step further after Dance 100 appeared first on Scottish Huntington's Association.

uniQure kondigt update aan over Amerikaanse Fase I/II klinische studie van de AMT-130 gentherapie voor de behandeling van de ziekte van Huntington

  This amazing shot won first prize in the Stronger Together in the HD Community competition organised jointly by International Huntington Association and European Huntington Association.   The competition was open to organisations and family members across the world as part of the organisations’ shared Huntington’s Disease Awareness Month campaign

Read More

The post Dance 100 and our supporters go global! appeared first on Scottish Huntington's Association.