HD Focus

When it comes to discussing difficult topics in relationships, the conversation surrounding Huntington's disease (HD) can be particularly...

We often think of the adult brain like a completed jigsaw puzzle—once all the pieces are in place, that’s it. If a few pieces go missing, as happens in neurodegenerative diseases like Huntington’s disease (HD), there’s not much we can do except try to slow the loss. But new research is challenging that idea in a big way. A new study has shown that it may be possible to grow new brain cells in the adult brain—and not just any cells, but the exact pieces that HD takes away. Even more amazing? These new cells can connect with the brain’s existing networks, as if finding their place in the puzzle and clicking right into place. This discovery opens the door to a bold new goal: not just slowing the loss, but rebuilding the puzzle itself.

What Gets Lost in Huntington’s Disease?

To see why this study matters, let’s start with the pieces that go missing in HD. The disease causes progressive damage to an area of the brain called the striatum. The striatum sits almost exactly in the center of the head and helps control movement, emotions, and decision-making. The specific puzzle pieces lost here are called medium spiny neurons, or MSNs.

Il 17 e 18 marzo si è tenuto al Palacongressi di Rimini il Convegno delle Associazioni in rete di Telethon, dal titolo: “La strada della ricerca dal laboratorio alla persona con malattia genetica rara: un percorso dove ogni passo conta”.

L'articolo Huntington Onlus al Convegno Telethon 2025 proviene da huntington-onlus.

Podarilo sa obnoviť a začleniť nové neuróny do poškodených mozog myší – 8.4.2025Toto sa podarilo použitím vlastných buniek myší a ich stimuláciou. Pomocou dvoch molekúl sa im podarilo spustiť v mozgu generovanie nových neurónov, ktoré sa napojili na stávajúcu mozgovú štruktúru. Molekuly sa podali priamo do mozgu myší. Táto terapia zlepšila pohyblivosť a stlmila mimovoľné …

Kmeňové Bunky – transplantácia Glia buniek Čítajte viac »

Sabato 17 maggio, nella Sala Mediateca dell’I.S.S.R. in Via Nomentana 56, sede di A.I.C.H.-Roma OdV, avrà luogo il nostro ventinovesimo convegno, che è anche il primo del 2025. In questo incontro di maggio, abbiamo pensato di approfondire gli argomenti presentati dalla Prof.ssa Anna Rita Bentivoglio – i 14 punti per avere un cervello più sano- […]

L'articolo EFFICACIA TERAPEUTICA DELLA RETE DI RELAZIONI NELLA MH sembra essere il primo su corea di huntington -AICH ROMA ONLUS -.

Join us on Monday, 12 May for a special Community and Online Forum hosted by Skyhawk Therapeutics, where...

5 апреля в Москве в «Библиотеке- читальне им А.С. Пушкина» прошёл очередной поликлинический день для семей с болезнью Гентингтона. Программа реализуется при поддержке Фонда президентских грантов. Команда медицинских специалистов ответила… More »

The post Информационный (поликлинический) день 5.04.2025 г. appeared first on Центр помощи пациентам с орфанными заболеваниями.

Imagine battling a disease that not only affects your body but also causes your mind to lose touch with reality, making it hard to see the world as it really is. This is the heartbreaking reality for many people living with Huntington’s disease (HD) who also experience symptoms of psychosis. Professor Clement Loy and his […]

Di seguito il nostro periodico, aprile 2025. BENVENUTI IN ENROLL! 2024 ENROLL-HD 2.0: PERCHÉ, COME, QUANDO? “RECENSIONE SUL FILM” A COMPLETE UNKNOWN UN AIUTO CONCRETO EFFICACIA TERAPEUTICA DELLA RETE DI RELAZIONI NELLA MH   LEGGI IL PERIODICO I N FORMATO PDF 

L'articolo Notiziario Aprile 2025 sembra essere il primo su corea di huntington -AICH ROMA ONLUS -.

5 апреля в Москве в «Библиотеке- читальне им А.С. Пушкина» прошёл очередной поликлинический день для семей с болезнью Гентингтона. Программа реализуется при поддержке Фонда президентских грантов. Команда медицинских специалистов ответила… More »

The post Поликлинический-информационный день 5.04.2025 г. appeared first on Центр помощи пациентам с орфанными заболеваниями.

Understanding Caregiver Dynamics: A Conversation on Meeting Needs Finding the right caregiving support can be challenging, especially...

Nel concetto di rete come lavoro della nostra Associazione, c’è la scelta di impegnarsi per avvicinare tutte le persone coinvolte dall’Huntington. Praticando questo principio abbiamo accolto la proposta dell’EHA di aderire a Moving Forward.

L'articolo Questionario sulle esperienze e bisogni della comunità Huntington italiana proviene da huntington-onlus.

Two recent studies offer fresh insights into how antidepressants, often prescribed to help manage mood and anxiety, are prescribed in Huntington’s disease (HD) and might also influence cognitive decline. One study zooms in on medication use in HD, while the other takes a broader look at dementia and antidepressants. Together, they reveal a complex and […]

A APDH convida toda a comunidade Huntington portuguesa para uma conversa especial com Luís Aguilar, um jovem espanhol que cresceu numa família marcada pela doença de Huntington e que, com coragem e criatividade, transformou as suas vivências pessoais numa poderosa ferramenta de partilha e reflexão. Nesta sessão online, Luis irá contar-nos a sua história, abordando …

Sessão on-line Luis Aguilar Read More »

Emma har levt nära Huntingtons sjukdom sedan hon var nio år, och hennes starka, modiga berättelse berör djupt. Trots allt hon har gått igenom, har Emma valt att vara öppen för att hjälpa andra som går igenom samma sak. Genom sitt engagemang i Riksförbundet och vårt Avsfondsprojekt, YTAN och sina personliga erfarenheter sprider hon ljus…

Inlägget Rösta på Emma som Lyssnarnas Sommarvärd 2025 i P1 publicerades först på RHS Riksförbundet Huntingtons Sjukdom.

Conforme os nossos estatutos realizou-se, dia 29 de março de 2025, pelas 14:30 horas na sede da APDH (Art.º 25º nº 2 alínea c), a Assembleia Geral Ordinária, com a seguinte ordem de trabalhos:1. Apreciação e votação do Relatório de Contas da Direção do ano de 2024, e parecer do Conselho Fiscal,2. Apresentação do relatório …

Março – 2025 Read More »

Over the past year, HDBuzz has been evolving, growing, and delivering on its mission—bringing clear, accessible, and accurate Huntington’s disease (HD) research news to families and researchers around the world. From major clinical trial updates to scientific breakthroughs, we’ve been at the forefront, translating complex science into clear, understandable insights. But as HD research advances, […]

Välkomna på stödgruppsmöte i Helsingborg 26 maj kl 18-20.30. Läs mer om innehåll och anmälan här nedan.   Hoppas vi ses!  

Inlägget Stödgruppsmöte i Helsingborg 26 maj publicerades först på RHS Riksförbundet Huntingtons Sjukdom.